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For Stakeholders

Pressure Ulcer Prevention at Home Project

We are looking for people to take part in a focus group about pressure ulcer prevention in the community.
We would like to hear from individuals and organisations who support people with long term neurological conditions, in the community. For example, Multiple Sclerosis (MS), Spina Bifida, Motor Neurone Disease (MND), Muscular Dystrophy (MD), Cerebral Palsy (CP) or Spinal Cord Injury (SCI).

What is the project about?

We are trying to find out what resources service users, carers and Personal Assistants (PAs) need to help them prevent pressure ulcers at home. We are working closely with those groups throughout this study (as participants and co-researchers). We are also interested in what health and social care professionals think about pressure ulcer prevention and if / how different organisations support people to manage pressure ulcer risk.

Who is doing the research?

Our research team is made up of service users, carers, PAs, university researchers, and healthcare professionals.

Who can take part?

Individuals and organisations who support people with long term neurological conditions, at home. For example, nurses, occupational therapists, physiotherapists, GPs, social care professionals, charities and wheelchair services. We would also like to include organisations who support PAs, such as independent living centres.

What am I being asked to do?

We are looking for people to join a focus group. During the focus group, you will be invited to share your experience and opinions about pressure ulcer risk management. Participants will also be invited to an additional workshop, later in the project. Participation in both groups is entirely voluntary. Standard rate travel expenses will be reimbursed.

How do I find out more?

Please contact us by email: or phone: 0113 343 0282. A researcher will get in touch to discuss the project in more detail and answer any questions. We will also send you more detailed written information.

This project has been approved by the University of Leeds, School of Medicine Research Ethics Committee (ref no MREC 21-069)

Thank you for considering this project!