PUQOL-P Registration

Permission for use statement (UK use)

Copyright of the PUQOL-P questionnaire and associated user manual will remain with the CTRU, University of Leeds and the Leeds Teaching Hospitals NHS Trust. The PU-QOL questionnaire cannot be amended in any way. For example, the instructions and items within each scale must be used as they appear in the questionnaire.

Permission for use statement (non-UK use)

Copyright of the PUQOL-P questionnaire and associated user manual will remain with the CTRU, University of Leeds and the Leeds Teaching Hospitals NHS Trust. The PU-QOL questionnaire cannot be amended in any way. For example, the instructions and items within each scale must be used as they appear in the questionnaire. It is expected that any translated and validated versions of the PUPQOL-P questionnaire be provided to the CTRU, where they will be added to an instrument repository and be freely available to use. We will notify you of any requests to use the relevant version. Copyright of the translated and validated versions will remain with the developers.

Privacy Notice

We would like to collect your name and contact details so that we can get in touch with you in the future about the PUQOL questionnaires. In particular, we are interested to know if you use these to collect research data. Provision of these details is completely optional and you can still download the questionnaires if you do not provide them. You can find out more about how we will use and store this data in the privacy policy below.

PUQOL Privacy Policy

  • This policy was written by the PURPOSE trial team at the Clinical Trials Research Unit (CTRU) at University of Leeds.
  • We would like to collect the name, professional affiliation and email address of anyone who downloads the PUQOL tools from this webpage. We will use this information so that we can review how useful these documents are and how widely they are used. We may also contact you in future regarding your research and to see if we can use it to improve the tools. This information will further support our research, which we carry out in the public interest.
  • The information you enter here will be sent to the CTRU at the University of Leeds via email, where it will be stored securely.
  • Your information will be held and used solely by the CTRU at the University of Leeds. We will not share the data with anyone else, and we will not use the data you give us for any purpose other than what is mentioned above.
  • If you have any questions about how your data are used, or you would like us to amend or delete your details, or access what information we hold about you, please contact PURPOSE@leeds.ac.uk. You can also contact the University of Leeds Data Protection Officer at dpo@leeds.ac.uk.
  • For more information, please go to https://ctru.leeds.ac.uk/privacy/.

    Full name (optional)

    Affiliation (optional)

    Email Address (optional)
    Please note that links to the document(s) will be sent to the email address you submit.
    If you choose not to submit an email address, we will not be able to send your documents to you.

    Are you happy for us to contact you at a future date regarding your use of PUQOL-P?
    YesNo

    Do you agree to the terms of use stated above?

    Are you using the PUQOL-P instrument within the UK? If no, please see Translation Guidelines

    Once your registration is complete, an email will be sent to the email address you sent that contains links to the documents you have registered for, along with contact details for the PUQOL team. In some cases, this email may be delivered to you junk/spam folder, so please check there if it appears not to have arrived.