Pressure Ulcer Prevention at Home 2 Study
We are looking for people to help with a research project about pressure ulcer prevention. You don’t need to know anything about pressure ulcers or research to take part. A previous project identified some resources that may help people to prevent pressure ulcers at home. In this follow-on study, we are developing and testing those resources.
We hope to involve a range of people with different kinds of knowledge and lived experience including:
- People who live at home with a long-term condition that limits movement. For example, Multiple Sclerosis, Spina Bifida, Muscular Dystrophy, Cerebral Palsy or Spinal Cord Injury.
- Carers and personal assistants who support people at home.
- Health or social care professionals whose role is relevant to pressure ulcer prevention or support for Long-Term Neurological Conditions.
- Staff or volunteers from charities or community groups whose work is relevant to this project.
You need to be over 18 and live in the UK to take part.
What is a pressure ulcer?
Pressure ulcers (sometimes called bedsores or pressure sores) are patches of damaged skin and tissue. They are often caused by lying or sitting in one position (for example, when using a wheelchair). Some conditions can make it difficult for people to move around, which can increase people’s risk of getting pressure ulcers. If left untreated, pressure ulcers can become a serious health problem.
What is the project about?
Most pressure ulcers can be prevented if people have the right support. We want to develop and test pressure ulcer prevention resources for service users, carers, PAs and professionals.
Who is doing the research?
This is a very collaborative project. Our research team is made up of service users, carers, personal assistants, researchers, health/social professionals and charity partners.
What am I being asked to do?
This is a very flexible project. You can choose the level of involvement that is right for you. This may include joining a research group to develop resources; helping to test resources and providing feedback; or coming to workshops. You may also be interested in joining our mailing list to be updated about this study and future studies.
Support
We will talk to you about what support you feel you need and put a plan in place. Support may include things like accessible venues / materials, IT support, and other reasonable adjustments. We understand that some people may need to bring another person to research activities (e.g. a support worker or friend).
Privacy
Your privacy is very important. We will treat what you tell us as confidential. We won’t share any information about you without your permission.
How do I find out more?
Please contact us by either email: pupstudy@leeds.ac.uk or phone: 0113 343 0282. A researcher will get in touch to discuss the project and answer any questions. We will also send you more detailed written information.
This project has been approved by the University of Leeds, School of Medicine Research Ethics Committee (ref no MREC 2182).
Thank you for considering this project!