The Locally Recurrent Rectal Cancer – Quality of Life (LRRC-QoL) study is an international study of quality of life and survivorship in locally recurrent rectal cancer.
31 sites, 17 countries, 11 Languages
The LRRC-QoL study has 3 workstreams:
Cross-Cultural Adaptation of the LRRC-QoL Questionnaire
The original LRRC-QoL questionnaire was developed in the English language and has been validated for use in the UK and Australia. Validation means checking that the questionnaire is applicable to specific groups of patients.
Workstream I of the LRRC-QoL study involves translating the LRRC-QoL questionnaire into 13 different languages and testing the translated questionnaires through interviews with patients. The aim of the interview is to establish whether the questionnaire is easy to understand and acceptable to patients.
If you would like to find out more information regarding participating in this part of the study, patient information leaflets for workstream I can be found here.
Validation of the LRRC-QoL Questionnaire and an International, Multi-centre Study of Quality of Life in Locally Recurrent Rectal Cancer
Workstream II is a study to measure quality of life in patients with locally recurrent rectal cancer from the time of diagnosis through to 12 months.
Workstream II consists of two parts; the first part will establish the validity of the LRRC-QoL in an international setting. The second part of the study will measure longitudinal outcomes in all patients with LRRC over a 12-month period.
Participating in workstream II will involve completing four questionnaires, including the LRRC-QoL questionnaire around the time of diagnosis with locally recurrent rectal cancer and then the LRRC-QoL questionnaire at intervals for 12 months.
If you would like to find out more information regarding participating in this part of the study, patient information leaflets for workstream II can be found here.
Qualitative Study of Survivorship in Locally Recurrent Rectal Cancer
Workstream III is a study to identify issues which are relevant to an impact upon the quality of life of patients who have been treated for locally recurrent rectal cancer at least 3 years ago.
Participating in this part of the study will involve an interview with a researcher to discuss your experience of surviving locally recurrent rectal cancer, the survivorship issues you experience and how they affect your quality of life.
If you would like to find out more information regarding participating in this part of the study, patient information leaflets for workstream III can be found here.