FOxTROT Patient & Public Involvement (PPI) Group
The FOxTROT Programme has involved patients and the public within its research from the very outset because it leads to better understanding of our patients and to better research. It means that they can be part of the decisions which may ultimately affect participants in the research and future patients.
We do this by:
- Ensuring that as far as possible, the research takes into account the practical needs of those patients who agree to take part.
- Ensuring the Patient Information Sheet & other documents are understandable, and address matters which are important to patients, their carers and their families.
- Ensuring that the content for the Patient & Public pages of this website can be easily understood.
- Liaising with bowel cancer patient groups and relevant medical charities about the existence and benefits of the research.
- Helping to communicate, in an understandable way, the progress of the research and its findings to those that have participated in it, bowel cancer patient groups and relevant medical charities.
Pete Wheatstone, the chair of the FOxTROT PPI Group talks in this video about why the FOxTROT Programme is especially important to him.
Members of the FOxTROT PPI Group
Pete was diagnosed with Stage 3 bowel cancer in 2014. Following his recovery, Pete became involved in PPI roles and continues to work with Bowel Cancer UK and Bowel Research UK and other prominent cancer charities and organisations in the UK & Europe.
Libby has twice been diagnosed with cancer and has been a carer for both her husband and mother following their cancer diagnoses. These experiences have helped her contribute significantly to a variety of public and patient activities within clinical trials and providing support to the Cancer Research UK’s Insight Panel to name a few.
“In April 2015, I began a 6 week roller-coaster, which had started because I did my bowel cancer screening test. The treatment I had was standard; surgery followed by a period of rest before a series of chemotherapy sessions. Since that time, I’ve been heavily involved with Bowel Cancer UK as a volunteer.“
“Although it’s been 16 years since my initial cancer diagnosis, its impact continues to be felt. I have since become involved with the National Cancer Research Institute, National Cancer Action Team, National Research Ethics Committee, Bowel Cancer UK and patient groups at the Royal Marsden to name just a few organisations.
Alison has an active interest in health and social care research, holding a PhD in Social Policy and a Masters in Disability Studies. Alison is specifically interested in how the use of ‘big data’ can improve the quality of life and outcomes for patients.