PUQOL-UI Registration

To access the PUQOL-UI questionnaire and a scoring algorithm please complete the details below. Upon submission a member of the study team will send you a copy of the questionnaire and the algorithm. The PUQOL-UI and relevant materials are free of charge to academic research and clinical use. A small not-for-profit administration fee is requested for industry use.

The PUQOL-UI questionnaire and associated materials presents independent research funded by the National Institute for Health Research (NIHR) under its Programme Grants for Applied Research Programme (grant reference number : RP-PG-0407-10056). The views expressed are those of the authors and not the NHS, the NIHR or the Department of Health.

Permission for use statement (English use):

Copyright of the Pressure Ulcer Quality of Life – Utility Index (PUQOL-UI) and the algorithm will remain with the, Academic Unit of Health Economics, CTRU, University of Leeds and the Leeds Teaching Hospitals NHS Trust. PUQOL-UI cannot be amended in any way. For example, the instructions and items within PUQOL-UI must be used as they appear in the tool (the indication of copyright should remain on any copies).

Permission for use statement (non-English use):

Please discuss with the PUQOL-UI study team if you wish to use this instrument outside the UK. The valuation study was based on a UK general population sample and may not be transferable outside a UK context.

Privacy Notice

We would like to collect your name and contact details so that we can get in touch with you in the future about the PUQOL-UI questionnaire and scoring algorithm. In particular, we are interested to know if you use these to collect research data. Provision of these details is completely optional and you can still download the questionnaires if you do not provide them. You can find out more about how we will use and store this data in the privacy policy below.

PUQOL Privacy Policy

  • This policy was written by the PURPOSE trial team at the Clinical Trials Research Unit (CTRU) at University of Leeds.
  • We would like to collect the name, professional affiliation and email address of anyone who downloads the PUQOL-UI questionnaire and scoring algorithm from this webpage. We will use this information so that we can review how useful these documents are and how widely they are used. We may also contact you in future regarding your research and to see if we can use it to improve the tools. This information will further support our research, which we carry out in the public interest.
  • The information you enter here will be sent to the CTRU at the University of Leeds via email, where it will be stored securely.
  • Your information will be held and used solely by the CTRU at the University of Leeds. We will not share the data with anyone else, and we will not use the data you give us for any purpose other than what is mentioned above.
  • If you have any questions about how your data are used, or you would like us to amend or delete your details, or access what information we hold about you, please contact PURPOSE@leeds.ac.uk. You can also contact the University of Leeds Data Protection Officer at dpo@leeds.ac.uk.
  • For more information, please go to https://ctru.leeds.ac.uk/privacy/.

    Full name

    Organisation

    Country:

    Email Address:
    Please note that links to the document(s) will be sent to the email address you submit.
    If you choose not to submit an email address, we will not be able to send your documents to you.

    Do you agree to the terms of use stated above?

    Are you using the English version of PUQOL-UI? If no, please contact David Meads (D.meads@leeds.ac.uk) or Carolyn Czoski Murray (c.j.czoskimurray@leeds.ac.uk)
    YesNo

    Are you using for...

    Other:

    Do you agree to be contacted regarding updates for PUQOL-UI resources (required):
    YesNo

    Once your registration is complete, an email will be sent to the email address you sent that contains links to the documents you have registered for, along with contact details for the PUQOL team. In some cases, this email may be delivered to you junk/spam folder, so please check there if it appears not to have arrived.