The ‘other’ information mentioned here may be useful or interesting to participants, but does not necessarily need to be given so soon after the participant stops taking part (i.e. it can be given soon, but a delay is acceptable). We also suggest that the topics here are lower priority than those given in the sections above, so might not be prioritised for inclusion in a written communication where space is limited.
Giving feedback on the study experience: “Can I give any feedback about my experience taking part in this study?”
If there is some way for participants to give feedback on their experience taking part in the study, this can be made clear to them. Participants who have stopped taking part early might have particularly useful feedback. Research sponsors could use this to understand how to improve their studies and design them in ways that are easier or less burdensome for participants to take part in.
Reminding participants of the option to give a reason for their decisions: “Why might it be helpful to know why I wanted to stop taking part?”
Participants have the right to stop taking part in any study without giving a reason. However, if they are happy to give a reason this can help the study statisticians to better understand the study’s results. It is particularly helpful to understand whether participants’ reasons for stopping participation have anything to do with their health improving or worsening, because this can inform the overall research question in a study about which treatment is better.